Thursday, January 3, 2013

WARNING: Momma on a mission: My girl may be Non Verbal, But you bet she can communicate!

   I really want to set the record straight (at least from my momma point of view) on a subject that I have had to advocate repeatedly with my Boo. I was in a conversation today where I was totally at a loss for words as someone clearly had no clue about what they were talking about. The subject: Non-Verbal = No Communication.
    What does Non-Verbal mean?  In many ways, it means different things to different people. For example: To a doctor, it may mean zero to no words written on an evaluation. To a therapist/teacher it means a student for them to teach. To a Momma, it may mean never hearing the audible words 'I Love you'. I could go on.....  however, there is one thing it absolutely does NOT mean. It does not indicate that someone cannot communicate! It gets me every time someone says, 'Oh, she doesn't talk, so how do you know what she wants? Or how do you know she is in pain?' Have you ever heard of body language? Or maybe it's a new theory called 'Momma's Intuition'. Sometimes, when there are no verbal sounds, my girl buries her head in my chest. I know then that she needs me to hold her. She also has this way of rubbing her nose against mine- code for 'I Love You'. What about when she grabs my hand and pulls me to the kitchen and points to the snack that she wants. There are also cues that she is uncomfortable or in pain. I know when she needs to go potty or wants to go play. It's pretty apparent when she is happy or sad.... or just wants to be left alone. Are there times I have no clue? You bet! But every single momma will tell you that they know their child. And when they say something is wrong, you'd better listen! 
    To prove my point even further, my girl is now somewhat verbal. Would the average Joe understand her? Probably not. But those who see her daily know exactly what she verbalizes. Now, when she rubs our noses together, she says, 'I Love You.' When she scissors her legs, she says 'Hurts'. You get my jist. Body language was our first 'words'. She knows how to tell me what she needs me to know. 
  I will never forget, one time registering at the Emergency Room late one night, the nurse, after reading the list of diagnosis asked, 'Is she verbal?'. I said, 'Not to you.' She then responded, 'Are you the primary caregiver.' YES I said. She then told me that she would make sure under no circumstances would we be separated so that I could communicate to them what my girl needed. Now there was someone who understood what this is all about! I was so thankful for that woman. She was truly an angel that night. 
  We all communicate non-verbally, every single one of us! Why are our special kiddos treated like something foreign? These kiddos are in there....just like you and me. They have wants, needs,  are smart, compassionate, loving, scared, happy, sad, excited, playful and most of them have a great sense of humor! You just have to 'talk' their language. Please remember, the next time you see a quieter kiddo, don't write them off. Try to connect and see what beautiful language they are speaking to you. You will be changed for the better! 
   

Hello another beautiful year....no more worry!

    Happy New Year, my friend! What a blessing it is to have another year before us. Usually in the first few weeks of a new year, I think on what might God have for me THIS year. It's never turns out to be what I think in my head. He always is faithful to send something my way that my mind hasn't thought of to be sure that I must rely on His Grace and Strength alone. I look back on 2012 with my jaw on the floor. The ups and downs were probably the largest I've ever seen. I'm still thinking on those and here we go on to 2013.
   I do know that my Savior is doing a work in my heart like none before. You know how you sit and read your devotions, get up, and the first words out of your mouth you need to ask forgiveness for! You pray and meditate, pray and beg, pray and pray and pray for God to change you from the inside out so the He will receive the glory. You are not alone. This Momma struggles daily with every step, every word, every thought being in obedience to Jesus Christ. That includes the daily life and tasks of a special needs momma. He knows the desire of my heart... to stay out of the hospital, to lessen Boo's doctor appointment load, her therapy load, her med list. Jesus and I have had numerous conversations about this. He has promised me that HE KNOWS. He knows me. He knows our girl. He knows our house. He knows the past. He knows the future.... and He is there. He tells us in Philippians to 'be anxious for nothing'. POSITIVELY NOTHING! We aren't even supposed to worry about what we will eat tomorrow, because He is there and knows exactly what we will need. All He asks of us is to trust Him completely. And you know what? He already knows that we will fail. That we will say 'sorry, lets try this again'. I wish I could convey to you that after walking with Him for almost 18 years, the peace that is settling into my soul is supernatural. It's the peace that is spoken of in Philippians that 'surpasses all understanding.'
  My God is capable of completely healing Boo. I know that with one single word from His Throne, she could be healed. There are days I am on my knees for this. Then I realize, Boo is Boo. Why would I want to change her. Yes, I long for her to be pain free, to not to be held captive in her little body. But do you know what she is doing? She is pointing others to God. Thru her suffering, her sweet spirit, her determination, her bravery, her peace. God is supplying her with huge amounts of grace, peace, and strength so that SHE is a vessel for honor. She comes in contact with so many doctors, therapists, teachers, etc. They are all aware she has defied the odds of living....pointing them to her Almighty Creator. Our Boo has great reward in heaven. One day, when we are there, I am sure that I will be blown away by this hero of the faith that has been given to me as a daughter.
  So this year, I pray for all of our special needs kiddos who have been Created Beautifully Special. God has a plan. A plan to show His love to those all around. I pray for us Momma's... that we will be aiding these vessels as we ourselves dedicate to walk with the Lord each step of this journey. That is the only way to do it and remain at peace. Otherwise, we look like a chicken with our head cut off.... and the sensory kiddos really don't like that! =)

Here's to you. Here's to me. Here's to this new year being Created Beautifully Special in Him.